Care For Carers: “I need someone to care for me too”

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27th October 2020
Care for carers statistics

Over the last few weeks, we’ve introduced you to some incredibly brave and inspirational carers, who have kindly shared their stories with us so that we can raise awareness for how the current Government restrictions are impacting their lives.

Sadly, we know that beyond these faces there are literally thousands more carers who are also in dire need of a respite break. One, who wished to remain anonymous, told us, “Now is the time I need help, I’m crying out for help.”

Here’s what else she had to say about caring for her adult daughter, who was born with cerebral palsy.

Tell us what your life is like on a daily basis?

“Very full of anxiety and depressing. My health is deteriorating. I can’t go where I want to go, there is no one I can leave [my daughter] with if I want to go to the shops. I’m finding it very, very hard.”

Has your caring role changed during COVID?

“It has changed because carers couldn’t come to us. I did everything on my own. It was very isolating and depressing.

The only time I get a little break is when [my daughter] gets to go on respite, she hasn’t been for a long time.”

Do you feel that you’ve had the right support for you and your loved one?

“Not really no. I need someone to care for me too. Carers are ignored. There is no one there to listen to us.”

How much would being able to take a break mean to you right now?

“It would mean a lot. Oh my god, it’s like you would be opening a paradise for me! I need a break. Everyone else is going for weekends away in the UK, I would like a little break to unwind and then come back.”

How do you think the next few months will be for you?

“It will be worse with winter coming, we will be stuck inside which is very depressing. As soon as it gets darker, I feel very withdrawn. How am I going to cope? I am dreading that.”

What would it mean to you to have access to urgent respite with Revitalise during this time?

“It would mean a lot. We can’t wait, I have been desperate for respite care.

I am in a different world when [my daughter] goes to Revitalise. I feel free, at last I can breathe and sit down and not have to run around. I feel like a normal person, the pressure isn’t there anymore. Respite is great.”

On how carers are treated…

“There needs to be more attention on carers. People should take notice of us; they should update us on what is happening. I have no one to talk to, everybody is busy with their own lives.

If something happens to me, I don’t know what will happen to [my daughter].”

 

To help carers around the UK, we’re asking you to do two things. Firstly, help us raise awareness of what carers are facing, by spreading the word to family, friends and anyone who will listen, and secondly, if you can, donate to our Raise A Million appeal. We’re creating a support fund to help those in desperate need of a break right now and anything you can donate really does help make a difference.

 


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